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Characteristics and implications of attrition in health-related quality of life studies in palliative care.

In English

Författare

  • Marianne Ahlner-Elmqvist
  • K Bjordal
  • Ms Jordhøy
  • S Kaasa
  • Magnus Jannert

Summary, in English

In a longitudinal study of 297 palliative care patients, 280 patients were followed from inclusion to death. Characteristics and health-related quality of life (HRQL) of the participants and those who later dropped out were compared at inclusion, and 3 and 2 months before their death. At inclusion, the dropouts were older (P = 0.001), had reduced Karnofsky performance score (P < 0.001), received more help from the local authority (P = 0.004) and had reduced HRQL compared with patients who continued in the study and completed the next questionnaire. There were no differences in any of the HRQL parameters between participants and dropouts 3 months before death. Two months before death, differences in HRQL were found, but in favour of the dropouts. Data from patients close to death may be representative of a larger group of patients, whereas initial dropouts may lead to a positive bias of reported HRQL.

Publiceringsår

2009

Språk

Engelska

Sidor

432-440

Publikation/Tidskrift/Serie

Palliative Medicine

Volym

23

Dokumenttyp

Artikel i tidskrift

Förlag

SAGE Publications

Ämne

  • Otorhinolaryngology

Status

Published

Forskningsgrupp

  • Laryngoesophagology, Allergy and Life Quality

ISBN/ISSN/Övrigt

  • ISSN: 1477-030X