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Democratic expert influence through bioethical advisory commissions? The case of Sweden

  • Ulf Kristoffersson (MD, PhD)
  • J. J. Cassiman (MD, PhD)
  • Jörg Schmidtke (MD, PhD)
Publiceringsår: 2010
Språk: Engelska
Publikation/Tidskrift/Serie: Quality Issues in Clinical Genetic Services
Dokumenttyp: Del av eller Kapitel i bok
Förlag: Springer


Bioethical government advisory committees have profound influence on political decision-making on gene technology issues, concerning not only patients with genetically related diseases, but also, potentially, the whole society.
• Decision-making on issues concerning all society should be democratically legitimate in all aspects, including the work of government advisory committees.
• Democratic legitimacy of expert advice is desirable not only for the democratic values per se, but also for the quality of political decisions.
• In the case of PGD legislation in Sweden, the national government advisory committee functioned as a bridge between political representatives, specialist civil servants, and scientific experts, but the connection with public opinion was more or less absent.
• Had the advisory committee worked more openly and allowed a multiplicity of perspectives being heard, the democratic and quality aspects in this legislation process would have been strengthened.



  • Social Sciences
  • Law and Political Science
  • expertise
  • democracy
  • bioethics
  • PGD
  • Sweden


  • ISSN: 978-90-481-3918-7

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