Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura barns räkning
Parents lived experiences from being asked to include their preterm baby in clinical research
Författare
Summary, in English
parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer
their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological
based analysis was carried out. Three themes were found:
experience of exposure, experience of insufficiency and experience of possibilities. The parents expired themselves being in a state of shock and their statements were characterised by the existing chaos. Despite this, the
parents experienced that they could do something good for
others in the future. Researchers have to be aware of the parents’ exposure, and attentive to their individual needs.
Avdelning/ar
Publiceringsår
2005
Språk
Svenska
Sidor
29-32
Publikation/Tidskrift/Serie
Vård i Norden
Volym
25
Issue
77
Länkar
Dokumenttyp
Artikel i tidskrift
Förlag
Sykepleiernes samarbeid i Norden
Ämne
- Nursing
Nyckelord
- clinical research
- informed consent
- neonatal intensive care
- parents lived experiences
- premature
Status
Published
ISBN/ISSN/Övrigt
- ISSN: 0107-4083