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Measuring outcomes in Parkinson's disease: a multi-perspective concept mapping study.

In English

Författare

Summary, in English

PURPOSE: To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. METHOD: We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). RESULTS: Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems. CONCLUSION: By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials.

Publiceringsår

2012

Språk

Engelska

Sidor

453-463

Publikation/Tidskrift/Serie

Quality of Life Research

Volym

21

Issue

Aug 26

Dokumenttyp

Artikel i tidskrift

Förlag

Springer

Ämne

  • Physiotherapy
  • Nursing
  • Occupational Therapy

Status

Published

Forskningsgrupp

  • Human Movement: health and rehabilitation
  • Sustainable occupations and health in a life course perspective

ISBN/ISSN/Övrigt

  • ISSN: 1573-2649