Living With Intestinal Failure Caused by Crohn Disease: Not Letting the Disease Conquer Life.
Författare
Summary, in English
This article reports the findings of what it means to live with intestinal failure caused by Crohn disease and how it influences daily life. Ten patients, 7 with an ostomy and 7 on home parenteral nutrition followed up at an outpatient clinic for patients with intestinal failure, were interviewed using a qualitative, phenomenological-hermeneutic method. The analysis of the transcribed data is described thematically and resulted in 3 main themes; (a) struggling to not be controlled by the disease, (b) walking on a thin thread, and (c) being seen as a person, not just as a patient. These themes led to the comprehensive understanding that living with intestinal failure was interpreted as the criticality of maintaining control over one's life and body while maintaining autonomy and not letting the disease conquer life. Life entails a constant struggle with much planning to live as normally as possible and get the most out of life. It was of great importance to be seen as a person and not just as a disease, affirm that life as it is has meaning, there is a state of suffering related to the disease, there are existential issues, and suffering is related to care.
Avdelning/ar
- Health promotion in nursing care
Publiceringsår
2015
Språk
Engelska
Sidor
12-20
Publikation/Tidskrift/Serie
Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates
Volym
38
Issue
1
Länkar
Dokumenttyp
Artikel i tidskrift
Förlag
Lippincott Williams & Wilkins
Ämne
- Health Care Service and Management, Health Policy and Services and Health Economy
Status
Published
Forskningsgrupp
- Health promotion in nursing care
ISBN/ISSN/Övrigt
- ISSN: 1538-9766