Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer
Författare
Summary, in English
Purpose The aim of this study was to illuminate parents' lived experiences of losing a child to cancer. Method Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach. Results One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life. Conclusion There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.
Avdelning/ar
- Barns och familjers hälsa
- BioCARE: Biomarkers in Cancer Medicine improving Health Care, Education and Innovation
Publiceringsår
2016-12-01
Språk
Engelska
Sidor
40-45
Publikation/Tidskrift/Serie
European Journal of Oncology Nursing
Volym
25
Fulltext
- Available as PDF - 513 kB
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Dokumenttyp
Artikel i tidskrift
Förlag
Elsevier
Ämne
- Nursing
- Cancer and Oncology
Nyckelord
- Death
- Lived experience
- Nursing
- Paediatric cancer
- Palliative care
- Parents
Status
Published
Projekt
- Children with cancer
- LUC3 - Lund University Child Centered Care
- Hospital-based Home Care for children with long-term illness
Forskningsgrupp
- Child and Family Health
ISBN/ISSN/Övrigt
- ISSN: 1462-3889